Friday, February 13, 2015

The Interweb Is A Scary Place

Today is day one of chemotherapy. I am sure I will have plenty of good writing material throughout the day. It'd be even better if I could make a quirky chemo friend but it's highly unlikely I'll find someone at chemo with a matching sense of humor.

Pro tip: if your oncologist has told you NOT to Google things- why in the world would you do it right before it's time to leave for chemo?

That's just silly. Especially when you find someone who's decided to write a cancer blog of terror. No grumpy cats. Just plenty of horror chemo stories. Maybe I'll have a few of my own after this but I'm still gonna dilute them with grumpy cats. 

I keep feeling like the instant they start the IV my hair is going to fly right out of my head. The most likely of scenarios. It will all just pop out. Instantly. 

Nope nope nope. Screw that- we need optimism! We're off to kill that tumor. I am Lancelot. I am Hildegard. I am Judith. Maybe I should have a chemo sword. 


No sword but I do have kiddo's magic bubble gum. <3 

Thursday, February 12, 2015

Bubble Girl Time and Gross Battle Wounds

Getting things prepared for chemotherapy tomorrow. How much is too much to bring to chemo? Two suitcases, my own blankets, my own decor, and a small library?

Screw it, I have cancer. I'm going to go all HGTV on my hospital room.

Adrian had an interesting 5th birthday yesterday. The first part of his day was lovely until he started running 103.5 fevers. Strep throat time!

Uh oh. Luckily, my helicopter mothering wasn't interrupted due to the simple practice of hand sanitizer and face masks at the walk in clinic. And yes, my doctor said it was okay to be around him. Which is good because there's not much that can separate me from my sick child. I'm like a momma grizzly bear.


I'm not sure this is a good look for me. I'd rather have the bubble. Would it be like a hover craft? That'd be awesome. Cancer people and germs don't mix. Which is inconvenient since I am a mother. That really does not compute. 

And just because I can and you kids totally want to see them. I am going to share the GROSS PICTURES of my chemo port surgical wound.

Recap: this port was put in for the chemo so they don't have to destroy my regular veins. So instead of opening up some juicy veins for chemo time, they'll just stab me in the chest to make it more comfortable. Wait, what?

For some reason this port has been killing me with intense pain. I think everyone is different but a quick Google brought up other cancer patients saying that their hysterectomy hurt less than their chemo port recovery. So that's always nice.

Well then. I am just thrilled to get a big needle stabbed in this bad boy tomorrow.


WARNING: GROSS ZOMBIE PICTURES AFTER THIS POINTTURN BACK NOW IF YOU'RE SQUEAMISH



OH MY GAWD. WHY. THE ZOMBIES ARE HERE!

Was I bitten by a zombie? Is this all part of the zombie apocalypse? Maybe being a liberal hippie wasn't such a good idea because I have no weapons.

Zombie jokes aside, that's the picture of the next day after the surgery. Gross, isn't it? EWWW.

This next one isn't so bad.


And this was yesterday. So it's healing. Now it's turning into a big zombie bump bruise. If you look closely you can see the white line which is the little tube running into my heart vein. Kinda cool if you're not me. This thing sucks.

Pro tip: if you ever have one of these put in you- prepare for intense pain, just in case. I was not prepared. I would have at least done the laundry first before having this done if I would have known it was going to reduce me to a whining man child.*

I report for chemotherapy tomorrow at 10AM sharp (they decided to let me sleep in) so I will keep you all updated. The endless opportunities for inappropriate grumpy cat selfies in the hospital are going to be great.


*Disclaimer: I have nothing against man children. Most of the time.

Wednesday, February 11, 2015

Awesome results!

My bone marrow biopsy and PET scan results came back good!!! I only have one tumor!! 

Just a uni-tumor for me!!! It's like a happy cancer unicorn!!

My doctor rocks- I told her how nervous I was for the results and she says, "Well, last time you were here I stuck a needle in your ass so I get it."

I think me and her make a good team. So the plan is to report for chemotherapy on Friday!! Let's kick some cancer ass!


Warrior Tattoo and Results Day

Cancer has some perks. They don't make up for the actual shitty cell mutation but they're a good consolation prize.

That's like when you go out to eat and find a giant piece of hair in your pasta after you've eaten half of it. It really sucked and you're going to vomit but at least you get a discount meal next time.

A person in my life suggested the idea of getting a tattoo for strength before chemotherapy. I cleared it with my doctor and off we went! It's surprising how getting a tattoo can really center yourself. The buzz of the needle, the slight but manageable pain, and the resulting beauty. Pain turns into something beautiful.

I guess that is what will happen when this is all over.


The feather will lighten up once it's healed. Feathers in Native American culture (which I have always found fascinating) are symbols of strength, power, and were often given to warriors before battle. (Academic disclaimer: this all becomes unique and altered depending on tribe but I went for a general meaning)

The birds? Freedom from the fight turning to flight. It's all poetic and awesome isn't it? Damn, I'm cool.

I put it on my left arm so when my chemotherapy is stabbed into my port on my right side I can look at this and remind myself I'm a warrior. 

After I've kicked cancer's ass, we will add a quote and turn the feather into a writing quill. Double meanings, baby.

Again, thank you for the tattoo donation. You know who you are.  

I can get my chemo in style on Friday.

In related news, off to the hospital today (home away from home) to get the results of my bone biopsy and PET scan. My doc is optimistic they will be good results but we shall see. I will keep you all updated as I hear the news. It is Adrian's fifth birthday today so I am hoping the day of his birth brings me some good news. After all, this was the best day of my life five years ago.

Random input: that port friggen hurts. Pro tip: if you ever (I hope you don't) have to get a chemo port, DEMAND some pain killers. It's not too heartening when I Google to see that many cancer patients say the port hurts worse than their hysterectomy did. 

Tuesday, February 10, 2015

Post-Port Recap and Chemo Class

The chemo class was just fine. Just a depressing hour of a nurse telling me how every part of my body is going to be doing something weird, hurting, falling out (hair/nails), or just overall vomiting. Turns out my chemotherapy is pretty damn intense, all five drugs they are using might be kicking my ass something tender. But I'll play bystander if it kicks the cancer ass! Just now starting to worry about how I am going to be up on campus. Looking into switching to some online classes which sucks but what can you do? I WILL graduate as planned. I don't care if I have to show up lookin' like the bloody bald exorcist if I can't find any online classes to switch to.

The port wasn't too terrible. Well, I'm not going to lie and say that it was fun but it was not nearly as bad as I built it up in my head to be. The fasting (ALL day long) wasn't fun. I almost ate grumpy cat again.


But I didn't eat him, he's alive and well. He started to resemble a taco for a brief period. So no biggie on the beginnings of the port- same old radiology department I had my needle biopsy and PET scan done. I'm starting to know nurses by name. Not sure how I feel about becoming a regular customer but at least the service was nice.

The technical name for what they did yesterday is a vascular access port implantation. Big words, big words. They will use this port to give me my chemo drugs so they don't have to run an IV all the time and destroy my veins. Basically, they cut me open in two spots, made a skin pocket (that's just nasty) and connected the tube of the port (see prior post for picture of said tube) to the jugular vein that pumps the medicine into my heart. Now I did not know all these lovely jugular vein and heart details until the nurse sat me down and told me every gruesome detail in the back room. Well, cue the freaking out at that point.

I'm not going to pretend I'm brave every step of the way. Because that's not reality. And if anyone else with a recent cancer diagnosis finds this blog I don't want them to feel like you have to always be brave. You don't. Some of this shit is scary. So be as fucking scared as you want. And demanding as you want to be.

And I found that very scary. Cue the high maintenance demands for the drugs to calm my freaking ass down. The veins in the crooks of my arms are starting to get a little wobbly so they had to put yesterday's IV bloodsucker into the wrist.


I was quite upset about the IV placement here. Like, irrationally so. Why the HELL did you put this thing by my wrist bone? That just gives me the heebie jeebies. Sometimes it's the small things we spazz out over in the bigger scheme of things.

My sister flew in from Colorado to spend a few days with us since the diagnosis which is just down right amazing because she is the biggest help ever to my mom and I. Adrian just adores her so she was able to pick up him from 4K and bring him in to visit me before the procedure. We're trying to make this experience less scary by making it a bit more real and not just a scary image in his imagination. So he got a tour of the hospital and got to meet the nice nurses. He's doing pretty good with things. I think seeing the hospital helped. He got to see mommy and know she was doing just fine and see that everyone was taking good care of her.

My son Adrian and I pre-surgery
The first words out of his mouth when he saw me, "MOM! Do you have your bubble gum?" Well of course I did. That gum goes everywhere now. He did very well, he came back to hug me, and then was skipping off to the gift shop with grandma. It was nice having my sister back there with me to ask the important questions. My questions tend to be really random and off the wall. Like, "This isn't your first rodeo right? You've done this before?" I think that's a valid question. Or, "What color is the blood/tumor/tissue/marrow/etc?"

Speaking of rodeos, my doctor (port placement extraordinaire) was smokin' hot. I felt like I was dropped into an episode of Grey's Anatomy. And apparently I talked, talked, talked, talked his ear off during surgery. I'm a talker under anesthesia. Anyone who knows me just the slightest bit probably isn't surprised by this. Apparently I gave him a nice long lecture about how this port made me a robot but not a Star Trek cyborg because I'm no Trekkie. And he said, "Like a droid?" Bonus points for Doctor Heart Throb. But seriously, I treated them all to a nice big ramble session about how strongly I feel about not being a Trekkie. 


So thumbs up for Dr. Bedroom Eyes and super awesome surgery drugs! Didn't feel much throughout the procedure except Dr. Smokin' Biceps shoving the thing in my chest but it wasn't necessarily unpleasant. And that's not just because he was a cutie. They used a giant flat screen ultra sound thing to help guide Dr. McHottie Pants on where to put my port. I asked for a picture (of course I did) and one of the lovely nurses brought it out to me afterwards.


Freaaaaaky! Can you see it floating in there? The little two heart shaped things on the left and then the tube going down by my spine? It's so gross and so awesome all at the same time.

Sure didn't feel awesome afterwards. Hurt like the flames of hell. But I suppose they were poking around in a very sensitive area. Incisions by the collar bone and above the booby zone aren't going to feel great. I still think this is all a giant hoax so these doctors can see my naughty bits.


Grumpy cat was not pleased. Woke up this morning in quite a bit of pain so my ambitious day of returning to school might be on hold again. And they don't even give you any good pain meds for this stuff! Probably figure they don't need a bunch of cancer pain pill addicts. But telling me to take some Aleve after you've been all up in my chest cavity definitely causes some raised eyebrows. Even for Dr. Hot Stuff.

Bubble Gum Magic



Adrian got me this gum this week and told me it was going to make me feel better. That I have to eat some everyday just like medicine!
He made me promise to always take it with me. Such a sweetheart. He's handling this well- the blessing of a young age. And a treatable cancer. Just a temporary sickness for mommy. smile emoticon
And you better believe that gum is going to every chemo treatment with me.
I took the gum with yesterday to my port surgery/thingie and he was very happy that I had it with me. Children are seriously awesome and mine just melts my heart. 

Monday, February 9, 2015

Port time!

Pre-port time!!! Time to put this thing in my chest- I'm gonna be a robot.

It's not as scary having a tube attached to your heart if you take silly selfies.

And wear awesome socks!