Friday, February 27, 2015

Dun dun dun.

Well kids, The big day is here.

Was sitting with some girlfriends and I ran my fingers through my hair......

Yup.

Clump of hair. Now the strands are just thinning progressively.

I am going to have one more HAIR day tomorrow and then we're buzzing it off this Sunday. Going to have a hair party with it. Get a mohawk. Let Adrian color it. Whateves.

The tingling scalp is weird. I was told about it but not necessarily enjoying that.

Now I'm not going to sit and pretend I'm taking it (as in this moment now) in perfect inspirational grace.

This shit sucks.

I'm angry and pissed off that I have to deal with this. I'm a good person. A great mother. A good friend. I donate to Toys for Tots. I recycle. I adopted a shelter pet. I don't eat animals.

So stupid.

But anyone who's had cancer is pissed off at some point too. It just flat out sucks.

BUT that chemo is KILLING it. And we want it nice and dead.

So there's a good inspirational speech for ya.

I found that clump of hair and I thought my heart was going to jump right out of my chest. It was so horrifying.

But we'll get through this. One more day of full on hair tomorrow when my mother and I take my son to the Children's Museum in Green Bay. He will have a blast. We'll get some 'goodbyeeeeee hair' pictures of me and him and then I will feel ready to say goodbye on Sunday.

And in the spirit of complaining earlier today about how movies do not portray cancer accurately.. Here's a picture of me feeling pretty damn shitty as I cuddled on the couch with Adrian.


He's so friggen adorable. And yeah, it's not all grumpy cat pictures.

My days are starting to form a pattern. 

When I first wake up. I have severe stomach cramps that kill me for a little bit. Then I feel good and I stay feeling good (overall- the stomach stuff is always lingering and you just learn to ignore it.) Then 4PM hits and I start feeling like junk. If I stay up late enough I start feeling better. It's a chemo roller coaster! I'd rather have Disneyland because this ride sucks.

I had a doctor's appointment today and they checked my blood cell counts.

And they look absolutely awesome!

Plus I learned that my rare type of funky cancer has a 97% survival rate... not just 95.

So sweet.

There's more important things than hair. My blood counts are awesome. My body is handling chemotherapy like a champ. My doctor thinks I'm fun because my cancer is so easy going. 

It's all good. It's just hair. Right?

Sigh. Maybe I'll write my hair a letter. It might look like this: 

Dear Hair,

You stay in my god damn head for one more day. One more afternoon. I want cute pictures with Adrian at the Children's Museum.

With my hair. 

One last hoorah. I'll bring a hat just in case.

SO STAY IN MY HEAD!

Love,

Linds

Sure, that sounds good. 

IT'S JUST HAIR.

Where is the baldness in popular culture? Survey time! (Movie spoilers lurking in this post!)

So I'm interested in doing a survey. An experiment of sorts. So I'm calling out to all of you in the Bloggersphere and Facebook land.

Here is my question:

Which movies about cancer have you seen someone actually lose their hair? Were they male or female? Which movie?


I'm just curious. There are two of my all time favorite movies about cancer that come to mind.

Fault In Our Stars and Stepmom.

And in neither of these movies do the characters lose their hair.

In Fault In Our Stars we saw Hazel as a child with no hair. Assuming that was during her chemotherapy and then her participation in a clinical trial saved her life. So I'm guessing chemo was no longer necessary at that point.

That makes sense.

And one thing I have noticed: when there's kids with cancer they are always bald. So bald cancer kids are okay but bald cancer adults are not?

But Gus? No chemotherapy for him at all? I find that surprising but I'm no doctor. I get the guy lit up like a Christmas tree during his PET scan but they wouldn't even try a little chemotherapy? Radiation? Why in the hell does this guy get to keep his hair?

LOOK AT THAT PROMO PICTURE! Their full locks of hair piss off my soon to be empty hair follicles. LOSE YOUR GOD DAMN HAIR LIKE THE REST OF US.

I just find it odd that in a movie that is so famously about people with cancer......... all the main characters have their hair.

Even the side characters keep their hair! There is not one baldy in that entire movie with a speaking part!

I really do not feel like that is a reality. Even all the kids in their cancer support group had their hair!

Since now I'm in the cancer club I am now around people quite often that I have cancer as well. Whether this is at chemotherapy, my doctor's visits, classes I've attended.... and so on.

One major thing? No one has any damn hair.

That is the reality.

So why don't popular movies always show that as a reality? Because hair is such a conventional part of beauty? Because we can't have a gorgeous main character be depicted in any way that makes him or her unattractive?

Are we really that shallow?

It appears the movie industry is.

Which is really not surprising. But as someone that is looking down the barrel of hair loss at any moment... it would be nice to see this HUGE part of cancer treatment be included in popular culture.

Cancer is a big cash card for movies and television. They use that to cash in on a disease that kills millions and destroys lives. But survivor stories are great stories- there's no denying that. They touch us. They make us feel such degrees of empathy and admiration for people that battle daily against this disease. It does make for a great story.

So why not include the very real and personal conflicts about hair loss? That is such an important part of this journey.

In Stepmom we have Susan Sarandon diagnosed with cancer which then easily becomes one of the main focal points of the movie. This is a movie I probably won't be able to watch (used to be one of my all time favorites) for awhile since my diagnosis. I just have a feeling it will reduce me to a giant lake of tears. Grab a boat.

But seriously, again this is another famous movie that has a main character with cancer.

AND SHE KEEPS HER DAMN HAIR.


What? Are you serious? All this chemotherapy and she keeps her hair? I find that hard to believe. She's just one of those lucky ones! Lucky Susan Sarandon gets to keep her hair! It makes for better TV to have attractive people in the spot light.

We all know Hollywood doesn't find bald attractive. Unless you're Vin Diesel.

Bald is not attractive if it's a sick bald.

Especially for ladies. We saw in 50/50 the main character played by Joseph Gordon-Levitt shave his head. So yay for accurate representation?

Now being the academic I am we have to think critically about that.

Do you think the gender has anything to do with this? Sorry to get all professor on you but geez, OF COURSE IT DOES. Gender always matters.

So the fact that he shaved his head but Susan Sarandon didn't? One of the most famous and attractive women in Hollywood isn't going to play a bald lady. Just no way.

It could be as something as simple as a director's decision. It really could be.

Or it is something more. Something more complicated about the way popular culture views cancer. Cancer is a badge of heroism in popular culture. But yet these characters are always presented as attractive, healthy, and overall good looking.

Let me tell you something. Cancer doesn't make you glow like you're pregnant. It doesn't give you some type of special C word pretty look. Maybe you glow if you had enough radiation- I really don't know.

But cancer fucks up your appearance. I just went to a class that told me all about how cancer will fuck my looks up.

You lose your hair. You possibly lose your eyebrows and your eyelashes. You gain weight.You lose weight. Your nails could fall off. They could become discolored. Your skin becomes super dry. You get bags under your eyes.

The list goes on and on and on.

It's enough to make anyone, even someone with a nice level of self confidence like myself, freak out a little bit.

So why the hell is this not represented accurately in popular culture?

I want to see a cancer movie get popular that has a main character with no hair. No eyebrows. That looks like hell in a hand basket on their bad days.

I want to see the reality. Not this prettied up version of cancer that sells tickets at the box office.

Cancer is not pretty.

It really isn't. Sure, our strength is beautiful. Our determination is sexy.

Fighters are hot. In all the ways.

We are some sexy cancer bitches.

But seriously. Physically, things are going to get tough. And again, as someone just counting the days down to baldness... I would like to see that baldness reflected accurately in movies about cancer.

Show me the bald people.

Show me reality.

EDIT TO ADD:

My brain can't stop whirling on this!!!

So some people have pointed out television to me. And that's a whole other blog post.

But for examples we have Lynette from Desperate Housewives, Celia from Weeds, and Samantha from Sex in the City showing some baldness during their cancer treatment.

YAY for representing cancer accurately.

But wait..... these ladies all eventually returned to a traditional standard of beauty. Their hair came back and on they went being gorgeous on television.

Oh shit.

That's not really the same now is it?

My theory: television has more flexibility as far as beauty standards go because at some point the character can/will regain their traditional image of beauty that fits in with mainstream pop culture and patriarchy.

And that means: at some point the cancer will go away and they will be pretty again!

It's not an all encompassing thing like being bald in a movie is. It's a short time deal.

But hey, it's something.

Wednesday, February 25, 2015

Sportin' the logo

Everyone's cancer has a color. The most well known is the PINK PINK PINK for breast cancer awareness.

Well, lymphoma is lime green.

Which personally I think is way cooler. Sorry other ladies, I like my green. I thought it would be fun to have some wacky/inappropriate/funny shirts to wear to chemotherapy. They came today and I'm already giggling at them.

Here's a preview:


Now everything about that is just fun. 

I'm getting used to the new haircut. I'm starting to wonder why I haven't cut my hair short before because oh my goodness it is convenient! I do miss my long hair though but I'm adapting well to the short hair. Just trying to think practical thoughts. 

Not big long sweeping hair thoughts. Sigh.

Any day now my hair will fall out so now we're just playing the waiting game. In The Hair Post, I detailed my feelings on that. The instant I find it coming out I will call my brother and we will buzz this shit off. Rip the band aid off. JUST DO IT.

It's harder to feel strong as the time comes. I think it is partially going to be a devastating moment. Our hair defines us in so many ways. But like I said before, I just need to remind myself that I am more than hair. We all are. We are going to make it into all these crazy shapes and designs to make it more fun. My son can participate and I think he will like that. We can do a mohawk!

In that spirit, I was able to borrow a wig from the cancer society. They didn't have the best selection (see previous wig mullet post) but I did manage to find one fun one. 


Grumpy cat is just poking in to question my redhead and pink  shirt choices. But I think this could have possibilities. I put a little hippy headband in it and that really helped pull the look together. It's a bit 70s but I think it's cute. Variety is good. 

Speaking of variety, I feel like I'm falling down a cliche cancer rabbit hole.

I bought a blender to make healthy smoothies. And now I'm considering yoga to help keep somewhat fit in between all this couch sitting and resting. 

Yoga and smoothies?!

What is this strange world?!

I do miss coffee. I miss the idea of it so much but whenever I try to drink it my entire body wants to vomit and seizure. WHY!?!

Oh well. Being healthy isn't a bad thing. But I find it rather unfair that the moment I have doctors and nutritionists telling me to stock up on calories that NOW I want fruit.

Whateves.  


Tuesday, February 24, 2015

Birthday Mania!

Hey everyone, do you like my new wigs?


Look it's Shirley Temple!!! I'm the redheaded stepchild!!


 What time is it? Mullet time!!!!


I really liked this color. It's sassy and fun! I was able to borrow one that looks similar in color but just shaped a lot more flattering. Sometimes I might just feel like being a red head!


Ahhhh! All those gray hairs came in! I knew they would the instant I turned 28!!!!

I was lucky yesterday. I don't know if I was just over hyper because it was my birthday but I had a GOOD day. The side effects from the chemo did not drag me down too much throughout the day. I felt like I went a little manic from having real energy so we had a busy, busy day. 

But it felt so good to be busy. 

The wig pictures are from this awesome Look Good, Feel Good event I went to hosted by the American Cancer Society at Aurora hospital. It was so awesome. I got a giant bag of designer makeup- easily worth up to 300 dollars. So YAY for makeup I would normally NEVER spend that much money on. They showed us how to fill in our eyebrows (in case they decide to take an exit thanks to the chemo), tie different types of scarves/turbans, and wig care tips. After the wig care tips we were tossed a giant box of wigs to try on!

And that's when I found that mullet wig. I'm not sure who would willingly pick out a mullet wig. Maybe the cancer has you so depressed you feel like there's no hope? The will to live as been eaten away and replaced by a synthetic mullet? Either way, if you want a mullet- wear the mullet. 

So that was fun. Props to the American Cancer Society for hosting that because I was able to meet other women with cancer, have a lot of giggles, and learned a ton of 'cancer beauty tips' I was unaware of. Awesomeness. Pro tip: if you get the big C- make sure you get yourself to one of those events!

So other than my wig selfie marathon, my birthday was a success. Since I can't drink (not that I was a heavy drinker to begin with) I decided I earned a manicure. 


Pink polka dots! That was a good idea. My sister was an angel and called ahead to get me a gift certificate. Thanks sis, love ya. So I think that's going to become an in between chemo tradition. Since I can't drink Starbucks anymore (coffee tastes nasty to me now-it's a tragedy) all that saved coffee money can go to biweekly manicures after chemo treatments. If you look good, you feel good. I really do believe in that philosophy for myself. It's important. Diva it up!

I was struck by an insane dedicated desire to make a fairy garden. I got some birthday money (thanks Grandma!) and was able to use that to start my garden. This was actually really good for me. It was nice to have a project and put all my restless energy into something productive. I think that will be a good way to continue to cope with things- especially on days if I don't have enough energy to go out and about. Projects, lots of projects! Maybe I should learn how to knit!! 

So I went to Ivy Trails in downtown Manitowoc to begin my fairy adventure. That is a great little shop- worth checking out! I finished at Hobby Lobby where I found the container and all the craft supplies. I wanted my fairy garden to be portable so I can bring it to chemotherapy with me. I know, like I don't bring enough as it is. But I want my room to be pretty!!! And this fairy garden just makes me happy. 

So ta-da!


I don't know why I was so determined to make this garden and make it NOW. Maybe it was because I can feel the sense of control over my own life slipping and I just wanted to have full control over something else. Even if it's just little miniature fairies in a fake garden. I think it turned out beautiful and will be a nice thing to bring to chemo treatments with me. 

I feel that sometimes I've been down playing how hard this has been so far on here. I don't mean to but I've never been one to sit and talk about my emotions in a healthy, non-joking way. I don't like emotions in most contexts. It's easier for me to deal with sarcasm and humor. But this has been a hard road so far. The side effects suck. Yesterday I felt great all day which was fabulous. Yet I pay for that today when I wake up in so much pain I can barely get out of bed. It comes and goes. I just want to keep living my life as normally as possible but sometimes I forget that things are not normal. I have cancer and I need to understand my limitations. And take help when it's offered. Rest when I can. 

But anyone who knows me well knows that 'rest' is a foreign concept when there's something I could be planning or vacuuming. But I'm trying.

And this is the part I want to give another shout out to all of those that have been my wonderful caregivers, helpers, and support since I got home.

I would have never been able to do this without my mom. I couldn't imagine going through this without her by my side to help me every step of the way.

My brother and his wife Brenda have been amazing from everything to taking Adrian for fun activities and helping around the house. Thanks guys.

My friends, all of you, are just the best. I'm amazed sometimes by what a wonderful motley crew I managed to accumulate over the years. 

All my family in Colorado for the constant support and encouragement across the miles. I miss you all so much.

And Adrian. That little boy has been the best support. Every time I look at him it makes me stronger. Every fighting step I take is for him. 

So thank you, all of you. And to those who have been donating, thank you from the bottom of my heart. I said this on Facebook but it bears repeating on here. When I was first diagnosed with cancer I had never felt more alone. But since I announced my diagnosis, I have never felt more loved.

So moral of the story? Try on fun wigs. Make sure you find that Look Good, Feel Good event. Get a manicure. And build yourself a fairy garden. 

Sunday, February 22, 2015

Happy Sunday!

Today is homework day. Have a giant pile of homework awaiting my immediate attention. All my teachers have been amazing about all of this, by the way. So go professors and your awesome understanding.

The chemo side effects are beginning to kick my tushie. It was a challenge to even sit still for my haircut yesterday. But I'm forcing myself to get up and do something every day. I can't handle laying around!

So since it's Sunday, which is homework day, I'm going to cut today's blog post short.

And just leave this here for you.


Saturday, February 21, 2015

Happy Birthday, have some menopause.

Okay so the irony about all of this is I was dreaaaaaading my birthday this year. The big 28!! The 'almost thirty' birthday. I should just save all that angst for 29 but I like to start things early. My birthday is on Monday but I thought a good blog reflection was due.

It's ironic but I was ready to start counting gray hairs this year.

Well, thanks to good ole cancer we can have some early menopause, arthritis (what I've been told to compare bone pain to), and a big bald head.

Jesus John Wayne- I'm going to feel really old.

Wait, menopause?

Yup.

Menopause at age 28. Who is not having a midlife crisis now?

Anyone else that can work out their health class info might have put together by now that means no more babies.

We are not sure on this part. It might go away and I could have more babies one day. Or it might not.

Now what is really ironic about all this is I was talking pre-diagnosis (so many things feel 'pre-cancer' at this point) about how I DIDN'T want any more kids. That I was good with Adrian and being able to focus 100% of my money, attentions, love, and time on just him. That an only child is often a happy, spoiled child. **Spoiled to a reason- back off Super Nanny.

But now that I'm told I might never be able to have more kids again? My ovaries are screaming.


For a rainbow baby? I don't know, whatever. For all the babies. Rainbow, polka dot, paisley. All the god damn babies.

Cancer really takes a stab at your femininity. What defines a woman? What about women with cancer that takes their entire lady parts? Their breasts? What makes them still a woman?

What makes all of us women?

I'm getting pretty deep on this but the news of my shattered fertility hit me like a blow to the ulcers. The instant that really sunk in, at Aurora Baycare, I went to a chapel. Not because I'm religious. Because I'm not (and no thanks) but because it was the only place to be alone. And I just sat with my thoughts. With thoughts of ten tiny toes possibly disappearing forever. Thoughts of little bumps in the night during pregnancy. Thoughts of how I felt when I first held Adrian. Thoughts of the fierce pride I still feel when he comes into a room. A mother should never have to give up that choice. A woman should not have to give up that choice.

But in the sake of killing cancer, it had to go.

I was offered the chance to see a fertility specialist at my oncologist appointment. At first I was like, "Yes! Freeze those eggs!"

And then I realized that:

1. It is not covered by insurance (I doubt this is the case for many insurance plans)
2. And it is insanely expensive. I could put Adrian through a few years of college first.
3. And it would delay my chemo and thus delay killing this tumor.

Well, so I skipped that option. I want this cancer dead. I want this thing gone that has tainted my life, my family, my household, and my friends. Even if I never get more babies, the cancer will die.

And that's the important part.

What makes a woman?

Not fertility, not hair, not perky tits, or a secure vagina.

My spirit, my essence, my soul. My love for delicate feminine acts. Polka dot nails with pearl coated fashion rings.  The click of high heels on tile floors. The roles of womanhood that embrace you in every stage of your life. Being a mother. My son's face when he squishes up his nose for a special momma kiss. The way my body was able to breathe life into a child and carry him into this world. Breastfeeding him for 16 glorious months. That connection I feel (that being a CIS woman- I am lucky to have) to my gender as a power structure. As something to embrace as spirituality. That powerful act of knowing my spirit is not defined by my body.

Love yourself and accept the things life brings you. I was lucky to have one beautiful child. If he is all I get, I am still luckier than most. <3

But if it turns out I won't ever be able to have more children, I will mourn for that. Mourn for that possibility, for that choice being taken away from me. Having choices ripped away from you can make you feel so helpless but this is another choice I was forced to make for the better of my health, finances, and family. I grew up like an only child even though I have older siblings. I got to go to Disneyland. Three times. I mean, c'mon.

More Disneyland for Adrian- that's what this means.

Come on Mickey Mouse- we'll come hug you after this is all over.

Phase Two is Complete!

So remember I said I was going to chop all my hair off? Every last bit? And donate it to a worthy hair charity?

Yeah, I did that today.


Oh my gawd where did my hair go?!

This really wasn't as upsetting as I thought it would be. I was pretty resigned to the idea long before the haircut today so really it was no biggie. No tears of agony, no curling up with the hair pieces on the floor.

We brought Adrian along because we thought that'd be helpful for him to see mommy at this stage with her hair. So we're going to do a little picture slide show of the best cut moments.







I feel like a giant nerd when I put the glasses on but I AM a giant nerd so maybe it's better to accept it.

I like it. It's freeing. I feel liberated from all that hair agony I was going through on a daily basis. There's no need to have a daily hair funeral and I feel like I was close to on my way. No need to package it up in a little mini hearse and stage some speeches. (Can we do speeches? I feel like that should still be an option)

No, it was good to get rid of it. And honestly, the convenience factor of not having a pile of hair to deal with on top of all my shitty chemo side effects is a big bright spot.

Thank you Salon 708 (Susan and Michelle, especially) for the haircut today. It was nice to take a piece back of my femininity and feel like I had the pants back on in that situation. And let's face it, anyone who knows me damn well knows I like to wear the pants anyways. So screw you chemo, I pick my own hairstyle.

Look at those pony tails! Donation time!


Friday, February 20, 2015

Pro Tip: WATER!

Well kids, I am writing to you from the cancer clinic in Two Rivers as I sit and have a bag of fluids pumped into my system.

Moral of the story? When they say drink 8-10 cups of water- DO IT. Of course, the dizziness might just be a fun side effect I get to enjoy and not something caused by dehydration. But we'll see. My doctor seems pretty chill it's dehydration and so do the nurses. This stop in and leave chemo area is pretty nice. Dilly bars, nice view of the lake, funky little sci-fi tv that extends from the wall, and nice recliner.



So in that news we have switched my care to the Cancer Care clinic in Two Rivers. Which today's emergency doctor's visit only justified that decision even more. So from now on I will be getting my chemo done right here in Two Rivers so it will be a lot easier for people to visit me. :) And it's just easier and quicker to see my doctor this way too!

I absolutely loved my doctor at Baycare but at this point we need to be realistic about travel concerns. Especially in snowy old WI.

So far dizziness has been the biggest side effect. Was having that super fatigue until they gave me the blood cell boost shot yesterday so that went away. Hoorah for small victories because it was replaced by our lovely friend: bone pain.

That sounds like it could be a really crappy metal band. Someone in Manitowoc should probably get cracking on snagging up that band name real quick.

Seriously. Otherwise I'm going to start a cancer kid band called Bone Pain. Who's with me? I'll play the triangle. And eat Dilly bars.




Thursday, February 19, 2015

Sleepy Time!

First round of chemo is OVER! DONE! FINISHED!

So that makes a few more rounds to go. I'm too tired to count. Enough to last until summer.

But yahoo!

So far the side effects have mostly been fatigue. Which I was warned about. But it's a strong fatigue. I can barely keep my eyes open writing this post right now. The bone pain comes and goes- mostly during the night. The eating still doesn't feel great but I'm managing to keep eating my meals. Nausea is worse in the morning. Really it's like a shitty pregnancy.

Okay maybe way worse than that. Because at least you want to eat if you're pregnant.

So just a quick (and I mean quick!) note to update everyone.

Today I go get my 'blood cell count' boost shot! Woohoo! I'm really nervous they're going to give it to me in an awkward place because every time the nurses referred to it they looked at my bum.

Maybe after the drill episode I'm just having flashbacks.

After this shot going to allow myself another day of laying on the couch and then tomorrow going to try and get up and resume a normal routine.

Sleepy times!



Tuesday, February 17, 2015

Chemo: My New Day Job

Only two more days (including today) and I am done with this round of treatment for two weeks!

Woooohoooo baby, freedom!

So far my side effects have been increasing on a daily basis but they're not as bad as I thought they'd be. We're up to: loss of appetite, constant nausea, nosebleeds, and bone pain.

Yes. BONE PAIN.

I didn't know that was a thing until now. I didn't realize your bones COULD hurt. But oh, they do. Apparently it's more common in young women. Just like my cancer.

Guess I'm just a special little lady!

But it's okay, they've been feeding me drugs to help ease the pain. They barely work but I birthed a nine pound baby I think I can handle some bone pain. Most of the time. I can't wait to be free and have a break from this. A little freaked out for my 'low blood cell' danger zone week when apparently all the shit hits the fan. Or so they say, in nursing terms.

I guess I'll get a bubble to live in.

But almost to freedom! My chemo job for this week is almost done and then I can enjoy more time with my family. And especially that little boy of mine who is just missing me like crazy.

We had some awesome bonding time during chemo yesterday.


Found this in the gift shop and we had a painting party. Then we cuddled in bed and watched Beethoven. I just love this little guy to pieces. He's doing so well with everything. Probably because I'm doing so well. Better keep that up!

Just a few more months of this chemo job (hopefully- I don't want any surprises!) and I can quit and move on to better horizons.

Cancer was like a big FU to the middle of my routine, my last semester at the University of Wisconsin-Green Bay, my awesome campus jobs, and most of all- my household. I may not be able to work but I will NOT give up on school. And I haven't. Plugging away like a little solider. Thank goodness for the internet. No one will tell me what I can't do! (Lost reference, anyone?)

But we've been juggling and it's just like any other time consuming job. Off to the chemo mines I go! My mom has been a godsend during this. Love ya momma.  

It will be okay. I know this. And the bright side, by the time my chemo is done it'll be summer and that is when everything is beautiful again. 

And when things get dark and depressing. Because sometimes that's unavoidable. You can't help but look around and go, "WHY ME? Why now? This isn't FAIR!" And that is all true. Because it's not fair. Some stupid dividing cells had to cause havoc in my perfectly ordered and planned life. So what to do when those feelings hit? Call up your oldest and dearest (thanks for driving up!) and have a pudding party.

Chemo Pudding Party!

Monday, February 16, 2015

Take Back Your Power: The Hair Post

Sitting in the room with my oncologist for the first time I remember one of the first questions out of my mouth when she told me I needed intense chemotherapy treatment.

Not, "Will I feel sick? Will I feel tired? What are the health risks? Am I going to die?"

The first words out of my mouth were: "WILL I LOSE MY HAIR?"

There are probably far more important questions I should have asked. There are plenty of very real and very scary chemotherapy risks. But like most women facing a cancer diagnosis and chemotherapy treatment- I was seriously concerned about my hair.

Hair is such an ingrained part of femininity in our culture. A woman's hair becomes her staple, her identity, and the main focal point of her physical appearance.

And our culture sure loves to value physical appearance. Being a feminist, I am aware of these cultural assumptions that I have never agreed with, that I do not believe in, and I resonate with the long held belief that inner beauty is true beauty.

But faced with the reality that I will lose all my hair? My thick, beautiful hair that goes down past my chest? That I might not only lose the hair on my head but eyebrows and eyelashes as well?

I had never felt more ugly. I had never felt more disgusted by what I was about to become. Despite all the feminism I have pumping through my body. Which is in greater amounts than these chemotherapy drugs.

That is one thing we should not forget as feminists. We are not immune to cultural expectations and stereotypes. We are not immune to our own physical expectations, insecurities, and fears. And there is nothing wrong with that. Nothing at all. We live here too, after all.

Hair is often connected to personality. It is a reflection of a woman's individuality in a shallow world. Redheads are unique and spunky. Blondes are sexy and fun. Brunettes are dark and mysterious. Curly heads are sassy. Straight heads are serious. The list of stereotypes goes on and on and on.

So what are bald chicks? Just sad little cancer patients. Poor little survivor. Poor little chemo duck.

But how to deal with it? How to deal with this blinding fear that hair equals beauty? How to deal with your own self disgust when you KNOW in your bones that the feminism that you believe so deeply knows that to be complete and utter bullshit?

Smash the patriarchy.

This chemo may take my hair, my eyelashes, and my eyebrows. It may make me look pale and weak. It may make my skin dry. It may take away my spot in the conventional beauty myth for the next few months. But these are physical imperfections, considered imperfections by a society that believes physical appearance must come before health and happiness. Killing this tumor is far more important than keeping my hair. And that's what I need to remember. What most cancer patients should remember. We like to hate the chemo because it is destroying our body as it destroys the cancer. But without it we'd just be a big ball of cancer. And that would suck even more.

My hair does not define me. Losing my hair will not change who I am. I will still be a wonderful mother, a compassionate friend, a passionate writer, an empathetic soul, a literary mind, and the awesome individual that I am. My hair loss will not change any of that.

Pro tip: Grieve for your hair. You need to do it. We are women and it is human for us to feel this blinding fear of the unknown that is a big bald head. But bald can be beautiful too. Even writing this I still struggle to believe it but I want to so, so bad. It is the mark of being a fighter, of surviving against this cancer threatening to eat away my body.

And what is more beautiful than that?

I felt more lost about my hair until I went and covered my bases. Yes, bald may be beautiful but I may not be comfortable with that amount of strength when the time comes. And I am on a ticking clock. My doctor gave me about two/three weeks from the start of chemotherapy. So my hair could be taking a quick exit as soon as February 27th. Not that I am counting. (Still human, remember?)

So here are the steps I have taken to keep my confidence in spite of such an earth shattering blow to my femininity.

1. Get some pretty scarves and hats!


A trip to the hippy shop at the mall yielded some excellent results. Pretty, pretty scarves and some nice, soft hemp hats. Pinterest has many, many different head scarf tying ideas so I am sure that will keep me busy when the time comes. I have heard and read that the wigs are hot and can be uncomfortable so I wanted to make sure I was covered in the scarf area. 

2. Go get that damn wig. I know I'll thank myself for that advance preparation later.



I thought shopping for the wig would be a devastating, depressing moment. The finale to my hair funeral. The dark magic to bring the lightening rod of my baldness down on my head.

So not the case. I went with my lovely sister, Angela, and we found a cute wig shop in Green Bay called Voga Wigs. The wig shop was bright and happy. The lady that helped me pick out my wig inspired me with her own survivor story of battling cancer (a way worse kind than mine) and kicking its ass. And she was gorgeous. Her hair came back straight instead of curly, she told me. So I wonder now if my hair will come back curly. I've always wanted curly hair. So hey, maybe that'll be a bright spot. I was surprised at how fast I found my wig. I only needed to try on four before I found the winner.



There are two main wig options. Synthetic or real hair? Synthetic has pros and cons like most things do. Pros: no need to style it everyday because it's already styled and ready to go. Cons: you can't change it. You can't dye it or curl it. I went with synthetic hair because it was cheaper and now I won't have to set aside an hour every morning to do my hair. Plus the real hair didn't look as good which is pretty surprising.

So here is the finished product. It's pretty and matches my own hair pretty well. I didn't get an after cut picture (the wig lady cut it nice and fixed the bangs) but everyone will see it soon enough.


Not bad! This losing the hair thing is a lot easier when you have the choice to slap some hair on your head whenever you like.

So go get that wig if you feel you need it. And do it in advance so that way you won't feel like your hair is just going to fly out of your head and you will be left unprepared. And don't forget to seat belt your wig in when you head home.



Step 3: Go get a haircut. Just do it.

This is the new do- coming soon.

I can sit around and watch the clock. Check the shower drain every morning waiting for the moment to come. Or I can take charge and just chop this shit off now.

It gets to a point that your hair begins to define you too much in treatment. At least for me- fresh smack in the beginning. It's the main focal point of my attention. Every morning I wash it, curl it, and comb it in this state of melancholy obsession. 

Nope. Get rid of it. So when I'm done with my chemo treatments this week I am going to my wonderful stylist who has come to know my hair so well and I am getting it chopped and donated.

I'll make that first step instead of waiting for it to come to me. It's just hair. I'll get rid of it first. Take back your power. Take back your confidence. It's just hair. I'm not going to hang on to the last strand, waiting in vain that chemo won't take my hair. Nooo, not my hair! It will spare me!

Bollocks. It will take my hair. It will come for my hair. So I'm going to beat the sucker to it and take it first. That's part of taking back the power. And it's my hair and therefore, my power.

4. I have heard this suggestion from many people and I think it's the winner. When the hair starts to fall out- just shave it, buzz it, get rid of all of it. But have a hair party first.



If you're a mom, you have to remember that this will be shocking to your kids. Adrian is already freaked out about my hair. When I told him that mom would lose her hair he looked at me and said,"But you will look like a man!"

Yikes kiddo. That hit me right in the ovaries.

But that's still pretty funny. Kids bring out the best inspiration. At least mine does for me. So when the time comes I'm handing that little angelic boy some sharpies, some paint, and some (supervised) scissors and we are going to go to town making my hair as wild and wacky before the final buzz.

It will be a good bonding moment for me and him. And most importantly, will help the transition for him.

And save me from the traumatic Adele listening buzz session in my bathroom that it does not need to be.


Grumpy cat digs the wig. I think it really brings out his eyes. 

Sunday, February 15, 2015

Grumpy Grumps


Not everything on this blog is going to be glorious sword fights. The side effects are starting to set in so now I'm feeling a bit grumpy.

Grumpy cat grumpy.

The chemo, being that double sided lovely bitch it is, has stolen my love for junk food.

I have a very loving relationship with junk food. Ask anyone. Taco dip? Yes, please. Hold the veggies and give me Doritos to dip with them. Pizza? Yes, please. Add tons of cheese and ranch. Breadsticks, with more ranch. No veggies. Soda? Yes, all of it. Coffee? As unhealthy and sugary as it gets. Starbucks, preferably. 

And now all that love has been stolen. 

The only thing that sounds good to me is omelettes with ketchup and cheese. So don't worry kids, I'm eating. But it's not fun. And that sucks.

This is the part where we throw in some politics. Medical marijuana for WI? Yes, please. Let's do that. But with our shitty Governor that will never happen.

But back to pizza.

Everyone eat some pizza for me today. Hold up a slice in solidarity. 

And thanks Kim for the awesome robe, it's really helping my grumpy cat, old lady morning that I am having. I'll gear up for some shenanigans later. Miss our jokes at the Bookstore. Miss work in general. Miss school. Miss normality. 

Managing to distract myself. Been re-watching Weeds while I've been getting my chemo pumped into my veins, did all my homework for the week, and later today I am going to work on some poetry that I may or may not share on here. We shall see.

I also have an appointment to chop off the hair next Saturday. I think it's better to chop it, donate it, and then the baldness will come easier. Hair post still coming soon. I need a less grumpy cat frame of mind to write that. Just hang in there. That sounds like a Monday post. Fresh and ready to pour my heart out about my feelings on hair, chemo, fertility, and feminism all in one glorious sword slicing blog post. 

Pizzaaaaaaaaaaaa. I misss pizzzaaaaaaaaaa. But it's cool chemo, just kill that tumor and I'll try not to kill you.

Saturday, February 14, 2015

Lindsay the Cancer Slayer!

Well, Risa brought me the most amazing prop today that will help with my cancer mischief.

Ta-Da!!!

I am Lindsay the Cancer Slayer. Which quickly turned into an epic Lightsaber/Sword battle with Grumpy Cat.

Sith Grumpy vs. Lindsay the Jedi Cancer Slayer.


I even made a gif because this was that important. We can do a still picture too for those of you that are prone to seizures. I don't want to cause any seizures. 

Sith Grumpy vs. Lindsay the Cancer Slayer

Notice Sith Grumpy's epic lightsaber and Sith lord hat. Grumpy cat and I have a complicated relationship. Sometimes he gives me comfort and sometimes I feel the need to attack him with a sword. It's okay. I suffer from random cancer rage blackouts. Not really. I just want an excuse to play with this awesome sword. 

Chemotherapy is more fun with visitors and I had some fabulous ones today. First I had some wonderful ladies come visit me:


Me with my lovely ladies- Alicia and Risa


Thanks ladies for the awesome hugs, girl talk, jogging, and beautiful gifts. I might have to sneak that scented candle in between the vital checks. I love you to pieces.

So far I haven't made a quirky chemo friend but the nurses are absolutely lovely. Marci (if you find this blog Marci- you're awesome) brought me an omelette this morning which totally made the big grumpy stick in my ass go away. Sometimes you'll have that. Pity parties are okay if they're brief and followed by either: an omelette or a cancer slaying sword. 

Pro tip: get yourself a chemo sword. 

And the number one visitor I had today:

Making himself at home.
Those faces!


Fight the cancer!
Kiddo had a full on blast visiting me at chemo this afternoon. It was fabulous. He made himself right at home and pushed all the buttons on the hospital bed. We raided the kitchen full of free crackers and he gave the cancer slaying sword a try. 

So far the chemo is going good. Only real side effects I've had are some weird chills and sweats. No real nausea yet but I have lost my appetite. Which sucks but hopefully it will come back. Forcing down some chips as we speak but it's not the same.

Cancer can be a bitch. You get the okay from the nutritionist to eat all the pizza you want and then you don't want any pizza.

But important notes: oncologist says the tumor is dying as we speak, I am handling the chemo better than most do so far, and I have wonderful friends and family to support me through this. Love you all.

I'll have to have another cancer slaying fight tomorrow. 

Friday, February 13, 2015

Chemotherapy: Day One

So far I've been lucky or perhaps the drugs haven't taken the time to really work into my system. The chemotherapy has been pretty easy. Contrary to what I believed beforehand the first round of chemo did NOT make my hair follicles fly out of my head. So that's good news. Nor have I started on fire. Grumpy cat is enjoying all the posing opportunities.

Grumpy Cat Chilling with my Chemo

I felt like I came close to starting on fire though. The first round of the chemotherapy they did, I was warned of a possible allergic reaction some patients have. And of courssssse, I reacted to it. All of a sudden I was sitting peacefully (after the nice calming meds they plunged into my heart tubes) and BAM.

ITCH ITCH ITCH ITCH. It was like having mosquito bites all over your body including the inside of your ears and your throat. ITCH it all!

My entire body broke out in hives and I had the worst kind of itches. Itchy, itchy, itchy!!! So horrible.

But thankfully, they stopped the chemo. Administered some very, very happy drugs and I completely passed out for the entire afternoon so they could finish up on that chemo drug. Grumpy cat went for a nice walk.

Grumpy Cat among the foliage 
So now I have reached a high point of restlessness. I am now on chemo drugs 2 and 3 which will be fed through my chest tubes for 24 hours. And went on a very inappropriate cancer chemotherapy selfie session around the floor. I am limited to the confines of the first floor but tomorrow I might have to break free (with permission, of course) to further my shenanigans.

 So I did a few laps with my awesome IV leash. Being hooked up to this just makes me want to cause some cancer fueled mischief. But the chance for mischief is relatively low. Probably no chance of making a quirky chemo friend. Pretty sure I am the youngest person here which was evident when I saw the sad eyeballs of all the nurses when I first came in. The nurses have been absolutely sweet and wonderful- no issues whatsoever. I met with my nutritionist and she said I can still eat all my junk food so that literally made my day. I might just have to take a bath in taco dip to celebrate. All I need to do is majorly AMP up the protein. Now since I'm a veggie that'll mean just adding yogurt, Boost shakes, yogurt, nuts, etc. to every meal. Should be doable. So YAY for pizza.

But all in all I make chemo look good!

I feel very sporty.
So a few laps around the chemo floor made me realize that I do not have much freedom to roam. So I have a feeling I might be going pretty stir crazy during this whole process. Thankfully, there have been no Exorcist style reactions to the chemo like I expected. My head has not started spinning and projectile vomiting everywhere. So the Google searches were wrong on that. At least so far. I'll be sure to get a picture if I turn into the girl from the Exorcist. Then I will need a young priest and an old priest.

Either way, doing good kids. Minimal side effects so far. The chemo drug I'm hooked up to now causes the hair loss and I can't help but glare at it with an irrational mean girl hate. But it's cool. I have a big blog post coming up on the hair thing but I'm saving that for when I have time to really center myself and write about it. I have lots to say on the subject and I need to make sure I say it right.

Anyways, I'll be good and try not to escape the confines of my chemo floor... Grumpy cat has other ideas but I'm trying to keep him in check. 

Free meeeeee!

Vacay Time

All checked in to chemotherapy and I must say things are pretty posh. Big flat screen TV with DVD player, nice comfy bed that I decked out with my own fuzzy blanket and pillow. Did some mild decorating and made things look a little more impressive.

Decorative scarf to cover up the ugly picture.

Cuteness and further inspiration. Notice Adrian's bubblegum!

Feminist inspiration

.The nurses were very impressed with my decorating on the fly abilities. They're just lucky I didn't bring any vases and wreaths. I was pretty close.

So far not much action except being pumped with some fluids. They hooked up my port to the IV and that was literally no big deal. The most painful part was the alcohol swab. And after that- easy peasy. I really feel like a robot now with all the extra cords, wires, and machines.

Mmm tube
Yeah, the port is no big deal now. Actually is a lot easier so now I'm seeing the logic (fine, fine) of using this instead of poking my arm veins.

So far no chemo drugs, just pumping me full of fluids and letting me sit back and relaaaaax. So yeah, no worries about me kids. This is like a mini vacation for now. They even gave me really, really ugly crunchy feeling slipper socks. So yes, everything the self help cancer books say about bringing all your home comforts is legit advice. Do it. Decorate your room, bring your fuzzy blanket, and all your DVDs. It might have taken a few trips to bring in all my goods but it was worth it. Here are the beautiful free socks:



I'll be here with my computer and Buffy the Vampire Slayer if anyone needs me... Updates to follow later. So far, so good! Will start the first round of chemo drugs in about an hour or so. So no big news yet. Love ya all.